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Genetic and Congenital
Researchers push for stronger patient partnerships in rare disease studies
A new study underscores the critical role of patient involvement in clinical trials, particularly for rare and ultra-rare diseases. The authors argue that including patients as active partners in the research process enhances trial design, recruitment, and overall outcomes. “Engaging patients as partners in the research process leads to more...
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Videos
26 Feb, 2025
February 28 is Rare Disease Day. Monica Wojcik, MD, MPH,...
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